Monday 6 October 2008

























































Hi Everyone
We've had a another busy few weeks. Gary ran The Bupa Great North Run to raise money for Cardio-Facio-Cutaneous syndrome, CFC International. He did brilliantly, with a cold, and completed the race in just over two hours. It's diffucult to tell, as so many of you are collecting sponsors for us, but I think we might reach £1000. All of the money goes towards research into CFC syndrome and provide support for families like us who have to cope with the daily challenges of raising a child with complex medical and learning difficulties - so a huge thank you to you all and well done Gary.


Marcus is progressing well; he's finally managed to pull himself to his feet but it requires a great deal of energy and effort for him to defy gravity! We've also just had the results from some tests he had done in August which discovered he is deficient in growth hormone. Hopefully we can get started on the growth hormone injections as soon as possible so he can start reaping the benefits.


The big build is nearing its end now and the downstairs is just about complete - upstairs still looks like a student bedsit but hopefully it will start to look more palacial once all the walls are plastered! We are sick and tired of dust. I am not best suited to cleaning at the best of times and I am sad to say, I have actually given up the fight now.


I have included some holiday pictures from 'Rip-Off France' - we had a lovely time but we really enjoy eating out and just couldn't afford to this year in France which was a real shame - £50 for 2 pizzas, chicken nuggets and chips and a bottle of Evian. Shocker!


Summer holidays seem such a long time ago now - our next big event is Marcus' birthday. We are having a party at home this year for him. Hopefully, he'll be able to go into his new bedroom for his birthday ;-)


Speak soon


love Sam xxx